HOWARD UNIVERSITY CENTER FOR SICKLE CELL DISEASE INVITE YOU TO
JOIN US AS WE OBSERVE SICKLE CELL AWARENESS MONTHHoward University Initiative for A Cure (#CURESICKLENOW)CALENDAR OF EVENTSFUNDRAISERFRIDAY, SEPTEMBER 1, 2017
6:00 PM – 8:00 PM
SICKLE CELL TEA SOCIAL – Live music & DJ
CALABASH TEAHOUSE & CAFE
1847 7th Street, N.W. Washington, DC
Registration Through Eventbrite Required – RSVP by August 29, 2017
Food available for purchase**All Proceeds to benefit Howard University Center for Sickle Cell Disease Outreach Programs*FRIDAY, SEPTEMBER 8, 2017
6:00 PM – 7:30 PM
SICKLE CELL AWARENESS EVENT AND CANDLELIGHT VIGIL.”
Howard University Hospital – Plaza
2041 Georgia Ave., NW. Washington, DC
***Allow us to honor your loved ones that have transitioned. Please send their names to be memorialized and read during the Candlelight Ceremony***SUNDAY, SEPTEMBER 10, 2017
SICKLE CELL RECOGNITION SUNDAY
HOWARD UNIVERSITY RANKIN CHAPEL**SICKLE CELL TRAIT TESTING WILL BE OFFERED AFTER SERVICE**
FOR MORE INFORMATION SEND EMAIL TO: firstname.lastname@example.org
Click link below for more information:
Get a jump on your Father’s Day shopping and help support a good cause!
Check out The Heart of Gold Sickle Cell Foundation of Northern Virginia latest fundraiser and learn how you can help
Donating to the DC Diaper Bank keeps bringing diapers to babies in need
The DC Diaper Bank provides diapers to social service organizations that are already helping families in need through comprehensive programs and services. As of October 2015 there are 30 organizations in the Diaper Distribution Network and growing each month. Collectively, the Distribution Network works to get an average of 100,000 diapers and other hygiene items to 3,200 families each month in Washington, DC, Maryland, and Virginia.
DC Diaper Bank has found that distributing diapers in this way ensures they reach those who need them most. It also provides partnering organizations a resource – diapers – they are not normally able to provide, increasing the services they can offer. By working with organizations that are already well established in the community and currently working with families in need, the DC Diaper Bank ensures that the diapers collected are distributed to infants and babies in the most efficient and timely manner. If you would like to learn more about becoming a Diaper Distribution Partner please contact email@example.com
Post from Sickle Cell Disease Coalition: http://www.scdcoalition.org/get-involved.html
People with sickle cell disease (SCD) are afflicted on two fronts – one by having a serious, chronic condition that inflicts pain and other complications – the other by a fragmented system of care.
Even though we know what causes SCD, there is only one approved treatment and no widely available cures. Individuals with SCD suffer from severe pain and infections with devastating complications such as brain injury, stroke, organ damage, and premature death. People with SCD are often unable to access quality care and the treatments they need.
The status quo is unacceptable, and we are setting out to change it.
Today, there are opportunities to transform this disease and the way we care for people with SCD. We are launching an international call to action on SCD by bringing together researchers, clinicians, individuals with SCD and their families, policymakers, and the private sector to focus our collective efforts and change the state of SCD around the world.
The time is now to change the course of this disease. Here’s how you can join us:
As an Organization
- Pledge to take on activities or programs that will move the needle on SCD. Advocacy organizations, government agencies, companies, policymakers, and foundations can contact us at firstname.lastname@example.org to share how they plan to help us transform SCD.
As an Individual
- Spread the word about the need to improve the state of SCD. Share our video and SCD fact images on social media. Use #conquerSCD to highlight our cause.
- Encourage your Member of Congress to join the Congressional Sickle Cell Disease Caucus.
- Read the report State of Sickle Cell Disease: 2016. This report was compiled by the American Society of Hematology based on the feedback of more than 100 thought leaders and has been endorsed by several organizations.
Sickle Cell Conferences and Events
The Sickle Cell Disease (SCD) Program at Children’s National invites you to the 7th Annual Family Education Symposium on “Living Well with Sickle Cell”.
Saturday, October 29, 2016 11:30 AM – 4:30 PM
Sheikh Zayed Campus for Advanced Children’s Medicine Children’s National Health System 111 Michigan Ave NW, 2nd Floor, Auditorium
Washington, DC, 20010
This year’s symposium will focus on helping patients and their families manage sickle cell disease while living life to the fullest.
New Sickle Cell Infographic From ASH
This “infographic” for sickle cell awareness was produced by the new Sickle Cell Disease Coalition, formed by American Society of Hematology a few weeks ago to align professional societies, Federal, and pharmaceutical stakeholders http://www.scdcoalition.org/