Rapper Wordz, beats odds with SCD

Kenneth Borner, also known by his rapper name Wordz, has come a long way since his youth. He was diagnosed with sickle cell anemia when he was 3 months old, and doctors said that he wouldn’t survive past 12. Now the 27-year-old northwest resident said he owes his life to God.
“Every few years, I was told that I only had a short time to live,” Borner said. “I know that me being alive is nothing short of a miracle. Rapping has helped me express myself in ways I never thought I could.”
Besides dealing with his disease, his life had another rough start.
While living in Minnesota, Borner said he was jumped and recruited into a gang when he was in seventh grade and began experimenting with drugs.
Since he couldn’t play sports due to his illness, he found a passion for rapping that same year. He began rapping to the lyrics of Tupac, Lil Wayne and Jay-Z.
A few months later, he began writing his own lyrics.
“Honestly, being in a gang didn’t make me forget about my illness, but once I started rapping, it was like I had something,” Borner said. “I was able to rap about my struggle in life and the things that I’ve been through.”
Borner and his mother moved to Las Vegas in 2004.
After Borner’s mother met pastor Gregory Kirby from Come Unto Me Ministries, Kirby persuaded the then-16-year-old to attend a service.
He also convinced the musician to change his secular rap music into something more meaningful and spiritual.

http://www.reviewjournal.com/entertainment/music/rapper-beats-medical-odds-finds-new-path-spirituality

Sickle Cell Transition E-Learning for Teens SCD

St. Jude Children’s Research Hospital, Department of Hematology, Comprehensive Sickle Cell Center, developed a series of educational modules “Sickle Cell Transition E-Learning Program (STEP) for Teens with Sickle Cell Disease”. The STEP program consists of videos designed as educational modules with interactive pre and post quizzes. The modules were designed as supplemental educational tools to help teens with sickle cell disease successfully transition from pediatric to adult medical care. There are 6 modules; a short synopsis of each module is provided below:

Module 1 : Sickle Cell and Me

This module provides a general definition of sickle cell disease, and common signs and symptoms of sickle cell disease.

Module 2: Healthy Living and Sickle Cell Disease

This module reviews the importance of nutrition and exercise for a teen with sickle cell disease; the effects of alcohol and tobacco use in a person with sickle cell disease; and the changes that occur during puberty in teens with sickle cell disease.

Module 3: Pain, Infection, and Sickle Cell Disease

This module reviews possible pain triggers, the importance of preventative pain measures, and treatment for mild or moderate pain episodes for a teen with sickle cell disease. Additionally, the video discusses signs and symptoms of infection in a person with sickle cell disease and the importance of knowing the proper response to signs of infection.

Module 4: Other Complications of Sickle Cell Disease

This module provides the basis for a preliminary discussion of some of the complications that may occur in a teen with sickle cell disease: stroke, avascular necrosis, acute chest syndrome, retinopathy, priapism, osteomyelitis, leg ulcers, gallstones, and some renal complication.

Module 5: Genes and Sickle Cell Disease

After reviewing this module, teens with sickle cell disease should be able to discuss the difference between sickle cell disease and sickle cell trait; to describe how genes are related to sickle cell disease; and to be able to name the most common types of sickle cell disease in the United States.

Module 6: Self-Advocacy for Teens with Sickle Cell Disease

The purpose of this module is to help teens with sickle cell disease become self-advocates by learning to communicate effectively; to assert his or her own interests; to speak up; to partner up; and to be firm, positive, and assertive. At the end of the video, there are two scenarios to help practice these skills.

You can access the modules at http://www.stjude.org/sicklecell ; click the link on the left, “Sickle Cell Interactive Teen Education Video” , and you will be directed to the links for the educational modules. The modules are available free of charge. The modules are not intended to take the place of the care and attention of your personal doctor. Our aim is to promote active participation in your care and treatment by providing information and supplemental education. Questions about individual health concerns or specific treatment options should be discussed with your doctor. Development of the modules were funded St. Jude Children’s Research Hospital, ALSAC, and a grant from the Verizon Foundation.

Sickle Cell Disease Patient Study 2015

Dr. Chioma Ekechi, Clinical Coordinator, Adult Transition Program, Center for Sickle Cell Disease, Howard University would like to offer persons with SCD to participate in an on-going study.

This study, “Adult Transitioning Program amongst Sickle Cell Disease Patients”, is being sponsored by the District Of Columbia Government with the aim of proposing policies that will  benefit Sickle Cell Disease patients.

For this to be possible, the Center for Sickle Cell Disease at Howard University needs to collect candid response data from patients with SCD in posed in the study questionnaire.

Participants must be at least 13years old and reside in DC, Maryland or Virginia area. Participants will be compensated for their time and help towards the fulfillment of this study program.

The Adult Transition Program for Center for Sickle Cell Disease also organizes educational health workshops and in collaboration with the Advocate of Justice of Education Department has other workshops, all geared towards giving individuals and their families a tailored  wholesome, fulfilling wellness approach to battle this life-long health challenge.
For more information visit the link below
http://www.sicklecelltransition.org

Show Sickle Cell Patients Love this Valentine’s Day

“Minority Heartdonors, African Americans in particular, have rare compatibility traits in their blood that are unique to the African-American community. Therefore, optimal blood matches for African Americans will come from members with their same ethnic background. However, while African-Americans comprise nearly 13 percent of the US population, less than one percent are blood donors.”

INOVA Minority Donor Outreach & Education

More than 44,000 blood donations are needed daily to meet the critical need for blood supply. While progress in medicine has helped reduced the severity of SCD, donations of blood closely matching that of adults and children with Sickle Cell disease is badly needed to save lives!

One of approximately 80,000 African Americans in the U.S. has SCD. Without the right blood match for a transfusion, immune reactions can develop from a transfusion causing more complications that make future transfusions less effective.

http://www.inova.org/get-involved/blood-donor-services/minority-donor-outreach-education
http://www.inova.org/get-involved/blood-donor-services/index.jsp
If this is your first time donating blood, the link has information and facts to help you better understand the process.

Thank you for saving the life of a Sickle Cell patient and for making a difference in the lives of people who love them.

Holiday of Hope

Join the Heart of Gold Foundation of Northern Va Inc. and Pediatric Specialist of VA Children’s National INOVA

A celebration for families of children with blood disorders

When:  Saturday December 13, 2014 2-4pm

Where:  GMU Law School Founders Hall 125
3351 Fairfax Drive, Arlington, 22201

Come celebrate the holidays with family, games, food talent show and more!

Mum and kids having family fun