HOWARD UNIVERSITY CENTER FOR SICKLE CELL DISEASE INVITE YOU TO
JOIN US AS WE OBSERVE SICKLE CELL AWARENESS MONTHHoward University Initiative for A Cure (#CURESICKLENOW)CALENDAR OF EVENTSFUNDRAISERFRIDAY, SEPTEMBER 1, 2017
6:00 PM – 8:00 PM
SICKLE CELL TEA SOCIAL – Live music & DJ
CALABASH TEAHOUSE & CAFE
1847 7th Street, N.W. Washington, DC
Registration Through Eventbrite Required – RSVP by August 29, 2017
Food available for purchase**All Proceeds to benefit Howard University Center for Sickle Cell Disease Outreach Programs*FRIDAY, SEPTEMBER 8, 2017
6:00 PM – 7:30 PM
SICKLE CELL AWARENESS EVENT AND CANDLELIGHT VIGIL.”
Howard University Hospital – Plaza
2041 Georgia Ave., NW. Washington, DC
***Allow us to honor your loved ones that have transitioned. Please send their names to be memorialized and read during the Candlelight Ceremony***SUNDAY, SEPTEMBER 10, 2017
SICKLE CELL RECOGNITION SUNDAY
HOWARD UNIVERSITY RANKIN CHAPEL**SICKLE CELL TRAIT TESTING WILL BE OFFERED AFTER SERVICE**
FOR MORE INFORMATION SEND EMAIL TO: email@example.com
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Get a jump on your Father’s Day shopping and help support a good cause!
Check out The Heart of Gold Sickle Cell Foundation of Northern Virginia latest fundraiser and learn how you can help
Donating to the DC Diaper Bank keeps bringing diapers to babies in need
The DC Diaper Bank provides diapers to social service organizations that are already helping families in need through comprehensive programs and services. As of October 2015 there are 30 organizations in the Diaper Distribution Network and growing each month. Collectively, the Distribution Network works to get an average of 100,000 diapers and other hygiene items to 3,200 families each month in Washington, DC, Maryland, and Virginia.
DC Diaper Bank has found that distributing diapers in this way ensures they reach those who need them most. It also provides partnering organizations a resource – diapers – they are not normally able to provide, increasing the services they can offer. By working with organizations that are already well established in the community and currently working with families in need, the DC Diaper Bank ensures that the diapers collected are distributed to infants and babies in the most efficient and timely manner. If you would like to learn more about becoming a Diaper Distribution Partner please contact firstname.lastname@example.org
Sickle Cell Conferences and Events
The Sickle Cell Disease (SCD) Program at Children’s National invites you to the 7th Annual Family Education Symposium on “Living Well with Sickle Cell”.
Saturday, October 29, 2016 11:30 AM – 4:30 PM
Sheikh Zayed Campus for Advanced Children’s Medicine Children’s National Health System 111 Michigan Ave NW, 2nd Floor, Auditorium
Washington, DC, 20010
This year’s symposium will focus on helping patients and their families manage sickle cell disease while living life to the fullest.
New Sickle Cell Infographic From ASH
This “infographic” for sickle cell awareness was produced by the new Sickle Cell Disease Coalition, formed by American Society of Hematology a few weeks ago to align professional societies, Federal, and pharmaceutical stakeholders http://www.scdcoalition.org/
In 2000, Congress passed the Minority Health and Health Disparities Research and Education Act (P.L. 106–525) establishing National Institutes of Health’s (NIH) National Center on Minority Health and Health Disparities (NCMHD; recently renamed as National Institute on Minority Health and Health Disparities, NIMHD) and charged the center with administering special grant programs focusing on disparities, coordinating minority health disparities research across NIH Institutes, and spearheading the development of an NIH-wide Strategic Plan on health disparities. This effort resulted in unprecedented developments, including 27 NIH Institutes and Centers developing individual strategic agendas to eliminate health disparities. Some of these agendas recognized the importance of disparities in pain care.
At about the same time, the 106th United States Congress passed Title VI, Section 1603, of H.R. 3244 declaring the era starting 2000 as the “Decade of Pain Control and Research”[1,2]. Subsequent high-profile pain initiatives included the Veterans Pain Care Act of 2008 (H.R. 6122), Military Pain Care Act of 2008 (H.R. 5465), and the National Pain Care Policy Act of 2009 (H.R. 756/S.660), provisions from which were included in the Affordable Care Act (ACA) signed in to law by President Obama in March 2010 . These high-profile initiatives placed pain on the national agenda as a major public health problem—one with real social and fiscal consequences. The problem of pain cuts across disease entities and treatment settings. According to recent estimates, 116 million American adults suffer from chronic pain; pain remains the principal reason for which people seek medical care [4,5]. Chronic pain is strongly associated with societal costs measured in terms of disability, poor quality of life, relational problems, lost income and productivity, and higher health care utilization including longer hospital stay, emergency room visits, and unplanned clinic visits. The burden to Americans are reflected in an enormous annual expenditure that ranges $560–$635 billion in direct and indirect costs —a marked increase from the previously estimated cost of $100 billion  and an estimated cost of employees’ chronic pain to businesses of $61 billion . Despite chronic pain’s concerning socioeconomic impact, many aspects of pain care, training, and research remain grossly under-resourced [8,9]. Only less than 1% of the NIH research budget is invested in pain and symptom management research  (Box 1).
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