Message from CEO Clarissa Pearson
Help us raise money for the Northern Virginia Sickle cell community. World Sickle Day, June 19th. There is power in numbers, so please be a part of ours. Working together helps break the Sickle Cell Cycle.
Sickle Cell Patients have to deal with stereotypes such as;
Being viewed as : poverty stricken, drug addicts and under-educated.
We are raising money because it is our goal to provide treatment protocols for all sickle cell patients. The goal of the treatment protocol for each Sickle Cell patients is to ensure that their treatment is the same , each time they visit the hospital. When Doctors provide Sickle Cell Patients with the treatment that works best for them, it not lessens the pain but the amount of time a patient has to stay in the hospital.
Our goal,is to,one day have enough clients and money So,that we are able, to provide support groups inside the hospital, a Sickle Cell Advocate, sickle cell literature on each unit and lastly better training for Doctors and Nurses and the best way to treat start an open dialogue between medical staff and patients on working together to treat their painful crisis.
Sickle Cell Patients spend their lives fighting to survive and then having to fight those whose main goal is to help us to feel better.
The day will come when we are tired of fighting, who will advocate for us then?
World Sickle Cell Awareness Day is June 19th. The General Assembly of the United Nations adopted a resolution on June 19, 2008 recognizing sickle-cell disease as a public health concern. World Sickle Cell Awareness Day provides an opportunity to increase understanding of Sickle Cell Disease and how the disease affects individuals and families worldwide.</span>
Sickle Cell Disease is one of the most common inherited blood disorders affecting 70,000 to 80,000 Americans and millions of people world-wide. Due to the severity of health complications associated with Sickle Cell Disease, the public needs increased information and education about the disease. </span>
Sickle Cell Disease is most common among people whose ancestors come from Africa; Mediterranean countries such as Greece, Turkey, and Italy; the Arabian Peninsula; India; and Spanish-speaking regions in South America, Central America, and parts of the Caribbean.
The World Health Organization (WHO) has estimated that Sickle Cell Disease contributes to 5% of the deaths of children younger than 5 years of age in some African countries. While an increasing proportion of affected children now survive past 5 years of age, many remain at risk of premature death. With early detection and use of public health interventions such as penicillin, many of these deaths can be prevented. Additionally, the burden of this disease can be reduced with increased global resources and effective partnerships. Help educate and unite in the awareness of Sickle Cell Disease.
From CEO Heart of Gold Foundation of Northern, Virginia Clarissa Pearson
I am fundraising for the Sickle Cell Community. So that we are able to provide them with items while In the hospital. And send children to a Sickle Cell Camp, so for a brief moment they are regular kids.
100% of our donations go to making a Positive Change in the Sickle.Cell Community. We are an 501 (c) 3 organization. This fundraiser is especially important to us, because it will be the last one before we take a break for the summer.
We are doing this Fundraiser to celebrate World Sickle Day which is recognized around the world on June 19. 2015. In 2014 we released balloons to honor those that have lost the battle.
This year we want to honor those that continue to fight.
It is our goal that by raising enough money we are not only able to send one child to camp (as in previous years) but two.
We also hope to have enough money to continue developing our Sickle Cell Comfort Kits, which are kits that we donate to the hospital to provide to their Sickle Cell Patients. There are kits for men and women that provide them with all of the comforts of home, such as crossword puzzles, items for their basic hygiene needs and also a visit from one of our Board Members.
Please help us reach our goal, your time and consideration will help us Speak up For Sickle Cell.
This donation will allow us to buy supplies for those Sickle Cell Patients that are being hospitalized. The kits will be filled with items that will make them feel closer to home.
This donation will help us send children with sickle cell to a camp that specialize in children with disabilities.