Sickle Cell Disease Patient Study 2015

Dr. Chioma Ekechi, Clinical Coordinator, Adult Transition Program, Center for Sickle Cell Disease, Howard University would like to offer persons with SCD to participate in an on-going study.

This study, “Adult Transitioning Program amongst Sickle Cell Disease Patients”, is being sponsored by the District Of Columbia Government with the aim of proposing policies that will  benefit Sickle Cell Disease patients.

For this to be possible, the Center for Sickle Cell Disease at Howard University needs to collect candid response data from patients with SCD in posed in the study questionnaire.

Participants must be at least 13years old and reside in DC, Maryland or Virginia area. Participants will be compensated for their time and help towards the fulfillment of this study program.

The Adult Transition Program for Center for Sickle Cell Disease also organizes educational health workshops and in collaboration with the Advocate of Justice of Education Department has other workshops, all geared towards giving individuals and their families a tailored  wholesome, fulfilling wellness approach to battle this life-long health challenge.
For more information visit the link below
http://www.sicklecelltransition.org

Show Sickle Cell Patients Love this Valentine’s Day

“Minority Heartdonors, African Americans in particular, have rare compatibility traits in their blood that are unique to the African-American community. Therefore, optimal blood matches for African Americans will come from members with their same ethnic background. However, while African-Americans comprise nearly 13 percent of the US population, less than one percent are blood donors.”

INOVA Minority Donor Outreach & Education

More than 44,000 blood donations are needed daily to meet the critical need for blood supply. While progress in medicine has helped reduced the severity of SCD, donations of blood closely matching that of adults and children with Sickle Cell disease is badly needed to save lives!

One of approximately 80,000 African Americans in the U.S. has SCD. Without the right blood match for a transfusion, immune reactions can develop from a transfusion causing more complications that make future transfusions less effective.

http://www.inova.org/get-involved/blood-donor-services/minority-donor-outreach-education
http://www.inova.org/get-involved/blood-donor-services/index.jsp
If this is your first time donating blood, the link has information and facts to help you better understand the process.

Thank you for saving the life of a Sickle Cell patient and for making a difference in the lives of people who love them.

Holiday of Hope

Join the Heart of Gold Foundation of Northern Va Inc. and Pediatric Specialist of VA Children’s National INOVA

A celebration for families of children with blood disorders

When:  Saturday December 13, 2014 2-4pm

Where:  GMU Law School Founders Hall 125
3351 Fairfax Drive, Arlington, 22201

Come celebrate the holidays with family, games, food talent show and more!

Mum and kids having family fun