Education, Advocacy and Healing
Advocacy & Resources
Whether you’re a patient, a caregiver, a friend, a family member or a provider, sickle cell advocacy is important as we work toward a universal cure. Please visit the links below to find resources to help you advocate for key legislative issues that are important to individuals living with SCD and their families.
- SCDAA’s 2021 Federal Legislative Priorities: SCDAA advocacy priorities for 2021
- Neurobiological Mechanisms of Pain in Sickle Cell Disease: A National Institutes of Health article on the physiology of pain resulting from SCD
- Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action: A Report by the National Academies of Sciences, Engineering and Medicine
- Evidence-Based Management of Sickle Cell Disease: A Report by the National Heart, Lung, and Blood Institute at the National Institutes of Health
- Letter to Congress from the SCD community: Urging leadership to mandate an annual hearing on the 2020 NASEM report on SCD.
Get Involved
How to Connect
The Heart of gold Foundation is always looking to connect with the community. Feel free to reach out to us via email
Get Involved
Sickle Cell Chapters of Virginia is a non-profit 501 (c) (3) statewide service organization representing nine (9) local chapters and their clients throughout the State of Virginia. Visit the url below and view info on all 9 Chaptershttps://sicklecell-virginia.org/member-chapters/
Your health and wellness matters. We're here to support you.
Health maintenance for patients with sickle cell disease starts with early diagnosis, preferably in the newborn period and includes penicillin prophylaxis, vaccination against pneumococcus bacteria and folic acid supplementation.
