
Advocacy & Resources
Whether you’re a patient, a caregiver, a friend, a family member or a provider, sickle cell advocacy is important as we work toward a universal cure. Please visit the links below to find resources to help you advocate for key legislative issues that are important to individuals living with SCD and their families.
- SCDAA’s 2021 Federal Legislative Priorities: SCDAA advocacy priorities for 2021
- Neurobiological Mechanisms of Pain in Sickle Cell Disease: A National Institutes of Health article on the physiology of pain resulting from SCD
- Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action: A Report by the National Academies of Sciences, Engineering and Medicine
- Evidence-Based Management of Sickle Cell Disease: A Report by the National Heart, Lung, and Blood Institute at the National Institutes of Health
- Letter to Congress from the SCD community: Urging leadership to mandate an annual hearing on the 2020 NASEM report on SCD.
How to Connect
The Heart of gold Foundation is always looking to connect with the community. Feel free to reach out to us via email
Get Involved
Your health and wellness matters. We're here to support you.
Health maintenance for patients with sickle cell disease starts with early diagnosis, preferably in the newborn period and includes penicillin prophylaxis, vaccination against pneumococcus bacteria and folic acid supplementation.
Join Our Community
No matter what stage, age, or condition you find yourself in, the Heart of Gold Sickle Cell Foundation is here for you! We invite you to come just as you are and be part of this community of people who are striving together to help and support people with Sickle cell!
Plan a Visit
The Heart of Gold Foundation provides advocacy through support, education, and events
No matter what stage, age, or condition you find yourself in, the Heart of Gold Sickle Cell Foundation is here for you! We invite you to come just as you are and be part of this community of people who are striving together to help and support people with Sickle cell!
Funding provided by a grant from the Virginia Department of Health.
Donate Blood. Save a Life. Every donation is critical and you can make a lifesaving difference. Patients with trauma, undergoing surgery, or with conditions that require blood transfusions, such as sickle cell disease, need blood and blood products. You…
Donate Blood. Save a Life. Every donation is critical and you can make a lifesaving difference. Patients with trauma, undergoing surgery, or with conditions that require blood transfusions, such as sickle cell disease, need blood and blood products. You…
Donate Blood. Save a Life. Every donation is critical and you can make a lifesaving difference. Patients with trauma, undergoing surgery, or with conditions that require blood transfusions, such as sickle cell disease, need blood and blood products. You…