Education, Advocacy and Healing
Advocacy & Resources
Whether you’re a patient, a caregiver, a friend, a family member or a provider, sickle cell advocacy is important as we work toward a universal cure. Please visit the links below or call the phone numbers to find resources to help or a family member get treatment and advocate for key legislative issues that are important to individuals living with SCD and their families.
- Inova Adult Sickle Cell Center, 8095 Innovation Park Drive, Fairfax, VA 22031 – call 571.472.1390, select option 2, then select option 1.
- Sickle Cell Expansion Act 2023 Congress: This bill establishes programs to increase treatment and other services for populations with sickle cell disease. Sickle cell disease is an inherited blood disorder that can lead to pain, anemia, infections, and stroke.
- Nephropathy of sickle cell trait and sickle cell disease NIH National Library of Medicine.
- Sickle Cell Trait vs Sickle Cell Disease
How to Connect
The Heart of gold Foundation is always looking to connect with the community. Feel free to reach out to us via email
Get Involved
Sickle Cell Chapters of Virginia is a non-profit 501 (c) (3) statewide service organization representing nine (9) local chapters and their clients throughout the State of Virginia. Visit the url below and view info on all 9 Chaptershttps://sicklecell-virginia.org/member-chapters/
Member Events
The heart of gold hosts several member events and donation drives. Please contact us and learn how you can help our cause and other in need.
Volunteer
We can all work together to find support. Contact us to find out how. Join The Heart of Gold Sickle Cell Foundation of Northern Virginia, INC. and advocate for patients with sickle cell disease and their families. Contact us for more information.
Your health and wellness matters. We’re here to support you.
Health maintenance for patients with sickle cell disease starts with early diagnosis, preferably in the newborn period and includes penicillin prophylaxis, vaccination against pneumococcus bacteria and folic acid supplementation.
Join Our Community
No matter what stage, age, or condition you find yourself in, the Heart of Gold Sickle Cell Foundation is here for you! We invite you to come just as you are and be part of this community of people who are striving together to help and support people with Sickle cell!
The Heart of Gold Foundation provides advocacy through support, education, and events
No matter what stage, age, or condition you find yourself in, the Heart of Gold Sickle Cell Foundation is here for you! We invite you to come just as you are and be part of this community of people who are striving together to help and support people with Sickle cell!
Funding provided by a grant from the Virginia Department of Health
Address:
The Heart of Gold Sickle Cell Foundation of Virginia, Inc. P.O. Box 23681 Alexandria, VA 22304 Phone: 703-370-3234
Service Times:
Monday – Friday 8am – 5pm Saturday and Sunday 8am – 12noon