Be a Lifeline: Why Platelet Donation Matters for Sickle Cell Warriors For our sickle cell warriors, transfusions aren’t just treatment – they’re often urgent lifelines. While whole blood is vital, platelet donation is especially critical during a shortage! …
The Fairfax County Board of Supervisors proclaimed September as Sickle Cell Awareness Month. Sickle cell disease is a serious and painful condition affecting an estimated 100,000 Americans and millions of people around the world. For those affected by this…
September is Sickle Cell Awareness Month. Everyone is encouraged to register for Be The Match. It is difficult for anyone to find a match, even more so for patients with SCD because the registry has a low number of…
Story by Science X Staff April 2025 Hydroxyurea remains effective long-term in reducing emergency department visits living with sickle cell disease (SCD), according to new research published inBlood Advances This is one of the first large, real-world, long-term studies…
Exploring the contraception options that exist for you with sickle cell disease could feel like a daunting task. You want to know what options will not increase your stroke risk while preventing pregnancy or even calming cramps and menstruation…
**FAIRFAX, VA** — September marks Sickle Cell Awareness Month, and this year, the INOVA Schar Adult Sickle Cell Center hosted a pivotal town meeting aimed at uniting advocates, county agencies, and the public to raise awareness about sickle cell…
Pulmonary hypertension is when you have high blood pressure, but it is limited to your lungs. (This is just like the high blood pressure you have when they take your BP at the doctors’ office, only it is only high in your lungs) in adult sickle cell patients, this is not a rare condition, and occurs in about 1/10 adults with sickle cell disease.
Dr. Smith feels says he feels encouraged about the progress so far but believes there is still room for improvement in the areas of getting more funding for treatment and community programs.
SCDAA and MedicAlert launched a pilot program designed to improve the emergency room experience for sickle cell warriors. HOW IT WORKSParticipants complete their MedicAlert digital health profile, which contains their physician-approved pain plan, their hematologist’s contact information and vital…
January is National Blood Donor Month Did you know? About every 2 seconds, someone in the U.S. needs blood. A single blood donation can save up to 3 lives. Only 3% of age-eligible individuals in the U.S. give blood…
