Support Your Community on World Sickle Cell Day

Message from CEO Clarissa Pearson

Help us raise money for the Northern Virginia Sickle cell community. World Sickle Day, June 19th. There is power in numbers, so please be a part of ours. Working together helps break the Sickle Cell Cycle.

fundly.com/world-sickle-cell-day

Sickle Cell Patients have to deal with stereotypes such as;
Being viewed as : poverty stricken, drug addicts and under-educated.$ world sickle cell day
We are raising money because it is our goal to provide treatment protocols for all sickle cell patients. The goal of the treatment protocol for each Sickle Cell patients is to ensure that their treatment is the same , each time they visit the hospital. When Doctors provide Sickle Cell Patients with the treatment that works best for them, it not lessens the pain but the amount of time a patient has to stay in the hospital.
Our goal,is to,one day have enough clients and money So,that we are able, to provide support groups inside the hospital, a Sickle Cell Advocate, sickle cell literature on each unit and lastly better training for Doctors and Nurses and the best way to treat start an open dialogue between medical staff and patients on working together to treat their painful crisis.
Sickle Cell Patients spend their lives fighting to survive and then having to fight those whose main goal is to help us to feel better.
The day will come when we are tired of fighting, who will advocate for us then?

Sickle Cell Disease Patient Study 2015

Dr. Chioma Ekechi, Clinical Coordinator, Adult Transition Program, Center for Sickle Cell Disease, Howard University would like to offer persons with SCD to participate in an on-going study.

This study, “Adult Transitioning Program amongst Sickle Cell Disease Patients”, is being sponsored by the District Of Columbia Government with the aim of proposing policies that will  benefit Sickle Cell Disease patients.

For this to be possible, the Center for Sickle Cell Disease at Howard University needs to collect candid response data from patients with SCD in posed in the study questionnaire.

Participants must be at least 13years old and reside in DC, Maryland or Virginia area. Participants will be compensated for their time and help towards the fulfillment of this study program.

The Adult Transition Program for Center for Sickle Cell Disease also organizes educational health workshops and in collaboration with the Advocate of Justice of Education Department has other workshops, all geared towards giving individuals and their families a tailored  wholesome, fulfilling wellness approach to battle this life-long health challenge.
For more information visit the link below
http://www.sicklecelltransition.org