Dr. Smith feels says he feels encouraged about the progress so far but believes there is still room for improvement in the areas of getting more funding for treatment and community programs.
SCDAA and MedicAlert launched a pilot program designed to improve the emergency room experience for sickle cell warriors. HOW IT WORKSParticipants complete their MedicAlert digital health profile, which contains their physician-approved pain plan, their hematologist’s contact information and vital…
Are you a valued employee battling sickle cell disease or any other chronic illness? It’s essential to prioritize your health while at work.In the United States, the Americans with Disabilities Act (ADA) ensures that employers with 15 or more…
January is National Blood Donor Month Did you know? About every 2 seconds, someone in the U.S. needs blood. A single blood donation can save up to 3 lives. Only 3% of age-eligible individuals in the U.S. give blood…
Sickle cell awareness month
🔷 Sickle Cell Awareness Month: Shedding Light on a Hidden Battle 🔷
Did you know that September is designated as Sickle Cell Awareness Month? It’s time to shine a spotlight on an often overlooked health condition that affects millions of people worldwide, particularly individuals of color.
🔹 What is Sickle Cell Disease?
Sickle Cell Disease is a genetic blood disorder that alters the shape of red blood cells, causing them to become rigid and crescent-shaped, instead of round. This change can lead to pain, organ damage, and a range of health complications.
🔹 The Prevalence & Need for Awareness:
Sickle Cell Disease is more common than you might think. In the United States alone, approximately 100,000 individuals live with this condition. Sadly, sickle cell awareness and understanding remain lacking, contributing to a lack of resources and support.
🌍 Globally, it’s estimated that over 20 million people are affected by sickle cell disease, making it one of the most prevalent genetic disorders worldwide. The majority of these individuals are of African, Caribbean, Middle Eastern, South Asian, and Mediterranean descent.
🔹 Know Your Status:
One crucial aspect of Sickle Cell Awareness Month is emphasizing the importance of knowing your sickle cell status. Genetic testing and counseling can help individuals understand their likelihood of passing on the condition and make informed decisions.
⚠️ The Shameful Neglect:
It is disheartening to note that despite the immense impact of sickle cell disease on communities of color, this month’s significance has often been ignored or swept under the carpet. This neglect perpetuates disparities in healthcare access and support for those with sickle cell disease.
#StandUpForSickleCell
This September, let’s join together in raising awareness about sickle cell disease. Let’s challenge the stigma, fight for equal access to care, and support the individuals and families living with this condition. Together, we can make a difference and create a more inclusive and supportive society for all.
🔹 Spread the Word:
Share this post to help shine a light on Sickle Cell Awareness Month. Let’s inspire others to learn, empathize, and support individuals affected by sickle cell disease. Together, we can break down barriers and foster a world that embraces the needs of all communities.
#SickleCellAwarenessMonth #KnowYourStatus #SupportAndEmpowersickle
Mouehla is heading to Harvard At age 8, Hanif Mouehla lay unconscious, intubated in Maria Fareri Children’s Hospital as his small body fought through another sickle cell crisis. Now 17, Mouehla is heading to Harvard. He graduated from Northern…
Pulmonary hypertension is when you have high blood pressure, but it is limited to your lungs. (This is just like the high blood pressure you have when they take your BP at the doctors’ office, only it is only high in your lungs) in adult sickle cell patients, this is not a rare condition, and occurs in about 1/10 adults with sickle cell disease.
Pulmonary hypertension is when you have high blood pressure, but it is limited to your lungs. (This is just like the high blood pressure you have when they take your BP at the doctors’ office, only it is only high in your lungs) in adult sickle cell patients, this is not a rare condition, and occurs in about 1/10 adults with sickle cell disease.
Congratulations to Ayana Johnson! On June 25 she was crowned Miss Virginia’s Outstanding Teen for 2022.
Ayana who is from Suffolk, Va., mission during her reign, is a social impact initiative entitled, Ayana’s R.E.A.D. – Readiness to Empower, Advocate and Dimmish Hopelessness in Chronic Illness.
Pulmonary hypertension is when you have high blood pressure, but it is limited to your lungs. (This is just like the high blood pressure you have when they take your BP at the doctors’ office, only it is only high in your lungs) in adult sickle cell patients, this is not a rare condition, and occurs in about 1/10 adults with sickle cell disease.