Here is key legislation that was passed in 2024 benefiting sickle cell patients living in Virginia. HB 255 – Adult Wellness Screening for Sickle Cell Disease Summary: This bill mandates that every adult in the Commonwealth may be offered…
Preventing SCD Crises During the Holidays The holiday season is a time for joy, family, and celebration. However, for individuals with sickle cell disease, it can also be a time of increased stress and risk of sickle cell crises.…
Exploring the contraception options that exist for you with sickle cell disease could feel like a daunting task. You want to know what options will not increase your stroke risk while preventing pregnancy or even calming cramps and menstruation…
**FAIRFAX, VA** — September marks Sickle Cell Awareness Month, and this year, the INOVA Schar Adult Sickle Cell Center hosted a pivotal town meeting aimed at uniting advocates, county agencies, and the public to raise awareness about sickle cell…
Pulmonary hypertension is when you have high blood pressure, but it is limited to your lungs. (This is just like the high blood pressure you have when they take your BP at the doctors’ office, only it is only high in your lungs) in adult sickle cell patients, this is not a rare condition, and occurs in about 1/10 adults with sickle cell disease.
Discover the incredible story of a young man and his bone marrow transplant experience. In this episode, we hear from a courageous young man and his supportive father as they recount their transformative journey through a bone marrow transplant…
Dr. Smith feels says he feels encouraged about the progress so far but believes there is still room for improvement in the areas of getting more funding for treatment and community programs.
SCDAA and MedicAlert launched a pilot program designed to improve the emergency room experience for sickle cell warriors. HOW IT WORKSParticipants complete their MedicAlert digital health profile, which contains their physician-approved pain plan, their hematologist’s contact information and vital…
January is National Blood Donor Month Did you know? About every 2 seconds, someone in the U.S. needs blood. A single blood donation can save up to 3 lives. Only 3% of age-eligible individuals in the U.S. give blood…
On this edition of Blood, Sweat and Cells: Real Talk About Sickle Cell Disease, we delve into the unique challenges women face when managing sickle cell disease, from menstrual issues to fertility concerns. Join us as we have a…