Pulmonary hypertension is when you have high blood pressure, but it is limited to your lungs. (This is just like the high blood pressure you have when they take your BP at the doctors’ office, only it is only high in your lungs) in adult sickle cell patients, this is not a rare condition, and occurs in about 1/10 adults with sickle cell disease.
Discover the incredible story of a young man and his bone marrow transplant experience. In this episode, we hear from a courageous young man and his supportive father as they recount their transformative journey through a bone marrow transplant…
Dr. Smith feels says he feels encouraged about the progress so far but believes there is still room for improvement in the areas of getting more funding for treatment and community programs.
SCDAA and MedicAlert launched a pilot program designed to improve the emergency room experience for sickle cell warriors. HOW IT WORKSParticipants complete their MedicAlert digital health profile, which contains their physician-approved pain plan, their hematologist’s contact information and vital…
Are you a valued employee battling sickle cell disease or any other chronic illness? It’s essential to prioritize your health while at work.In the United States, the Americans with Disabilities Act (ADA) ensures that employers with 15 or more…
January is National Blood Donor Month Did you know? About every 2 seconds, someone in the U.S. needs blood. A single blood donation can save up to 3 lives. Only 3% of age-eligible individuals in the U.S. give blood…
On this edition of Blood, Sweat and Cells: Real Talk About Sickle Cell Disease, we delve into the unique challenges women face when managing sickle cell disease, from menstrual issues to fertility concerns. Join us as we have a…
This sickle cell awareness month, the Heart of Gold Sickle Cell Foundation of Northern Virginia invites you to discover the significance of knowing your sickle cell status.Join us as we shed light on understanding the distinction between sickle cell…
In this heartfelt episode, join host Valerie Bey and her guest Dr. Clarence Pearson as they dive into a deeply moving conversation with a courageous father who opens up about his journey of raising a daughter with sickle cell…