The holiday season is a time for joy, family, and celebration. However, for individuals with sickle cell disease, it can also be a time of increased stress and risk of sickle cell crises. These crises can be painful and…
Exploring the contraception options that exist for you with sickle cell disease could feel like a daunting task. You want to know what options will not increase your stroke risk while preventing pregnancy or even calming cramps and menstruation…
**FAIRFAX, VA** — September marks Sickle Cell Awareness Month, and this year, the INOVA Schar Adult Sickle Cell Center hosted a pivotal town meeting aimed at uniting advocates, county agencies, and the public to raise awareness about sickle cell…
Pulmonary hypertension is when you have high blood pressure, but it is limited to your lungs. (This is just like the high blood pressure you have when they take your BP at the doctors’ office, only it is only high in your lungs) in adult sickle cell patients, this is not a rare condition, and occurs in about 1/10 adults with sickle cell disease.
Dr. Smith feels says he feels encouraged about the progress so far but believes there is still room for improvement in the areas of getting more funding for treatment and community programs.
SCDAA and MedicAlert launched a pilot program designed to improve the emergency room experience for sickle cell warriors. HOW IT WORKSParticipants complete their MedicAlert digital health profile, which contains their physician-approved pain plan, their hematologist’s contact information and vital…
January is National Blood Donor Month Did you know? About every 2 seconds, someone in the U.S. needs blood. A single blood donation can save up to 3 lives. Only 3% of age-eligible individuals in the U.S. give blood…
Understanding Sickle Cell: Essential Guide for Teachers For the SCD Warriors starting school: School is about to begin and along with your medical make sure teachers are aware about sickle cell awareness. Students with sickle cell disease may:…
Sickle cell awareness month
🔷 Sickle Cell Awareness Month: Shedding Light on a Hidden Battle 🔷
Did you know that September is designated as Sickle Cell Awareness Month? It’s time to shine a spotlight on an often overlooked health condition that affects millions of people worldwide, particularly individuals of color.
🔹 What is Sickle Cell Disease?
Sickle Cell Disease is a genetic blood disorder that alters the shape of red blood cells, causing them to become rigid and crescent-shaped, instead of round. This change can lead to pain, organ damage, and a range of health complications.
🔹 The Prevalence & Need for Awareness:
Sickle Cell Disease is more common than you might think. In the United States alone, approximately 100,000 individuals live with this condition. Sadly, sickle cell awareness and understanding remain lacking, contributing to a lack of resources and support.
🌍 Globally, it’s estimated that over 20 million people are affected by sickle cell disease, making it one of the most prevalent genetic disorders worldwide. The majority of these individuals are of African, Caribbean, Middle Eastern, South Asian, and Mediterranean descent.
🔹 Know Your Status:
One crucial aspect of Sickle Cell Awareness Month is emphasizing the importance of knowing your sickle cell status. Genetic testing and counseling can help individuals understand their likelihood of passing on the condition and make informed decisions.
⚠️ The Shameful Neglect:
It is disheartening to note that despite the immense impact of sickle cell disease on communities of color, this month’s significance has often been ignored or swept under the carpet. This neglect perpetuates disparities in healthcare access and support for those with sickle cell disease.
#StandUpForSickleCell
This September, let’s join together in raising awareness about sickle cell disease. Let’s challenge the stigma, fight for equal access to care, and support the individuals and families living with this condition. Together, we can make a difference and create a more inclusive and supportive society for all.
🔹 Spread the Word:
Share this post to help shine a light on Sickle Cell Awareness Month. Let’s inspire others to learn, empathize, and support individuals affected by sickle cell disease. Together, we can break down barriers and foster a world that embraces the needs of all communities.
#SickleCellAwarenessMonth #KnowYourStatus #SupportAndEmpowersickle
We are immensely proud of Sickle Cell Warrior Page Jr. and his remarkable journey of resilience. Despite enduring a bone marrow transplant, chemotherapy, radiation, and extended hospital stays, he managed to excel academically. He has consistently made the honor…