Heart of Gold - Sickle cell Advocacy and Support
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8
Feb

Medical Minutes

Dental care is often overlooked, but for people living with sickle cell disease or carrying the sickle cell trait, oral health can be a critical part of preventing serious complications and protecting overall wellness. In this episode of Medical…

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4
Oct

Jones: Know Your Sickle Cell Trait

The Jones Family opens up about their experience raising a daughter with sickle cell disease. They share their story to emphasize the importance of knowing your sickle cell trait status and staying informed about sickle cell awareness.

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4
Oct

Hill: Know Your Sickle Cell Trait Status

Meet the Hill Family, whose daughter lives with sickle cell disease. They share their journey and highlight the importance of knowing your sickle cell trait status. The Hills also discuss how treatments like hydroxyurea, along with healthy choices in…

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4
Oct

Alan: Know Your Sickle Cell Trait Status

Fonta Gilliam, the mother of a child with sickle cell disease, shares her journey of supporting her daughter’s care with hydroxyurea. She also highlights the critical need for blood donations from people of color, who play a vital role…

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4
Oct

Sickle Cell Awareness: Did You Know

Fonta Gilliam, the mother of a child with sickle cell disease, shares her journey of supporting her daughter’s care with hydroxyurea. She also highlights the critical need for blood donations from people of color, who play a vital role…

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20
Aug

Sickle Cell Breakthrough – Shauna’s Story

Researchers at Johns Hopkins performed a half-match bone marrow transplant. This pioneering procedure successfully treated Shauna Whisenton’s sickle cell disease and gave her a new lease on life. For more information, visit http://www.hopkinsmedicine.org/hemato

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19
Jun

Be a Lifeline: Why Platelet Donation Matters for Sickle Cell Warriors

Be a Lifeline: Why Platelet Donation Matters for Sickle Cell Warriors   For our sickle cell warriors, transfusions aren’t just treatment – they’re often urgent lifelines. While whole blood is vital, platelet donation is especially critical during a shortage!  …

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18
Jun

Sister’s Bone Marrow Transplant Cures Child’s Sickle Cell Disease

September is Sickle Cell Awareness Month. Everyone is encouraged to register for Be The Match. It is difficult for anyone to find a match, even more so for patients with SCD because the registry has a low number of…

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25
Apr

Real-world study finds Hydroxyurea effective long-term in children living with sickle cell disease

Story by Science X Staff April 2025 Hydroxyurea remains effective long-term in reducing emergency department visits living with sickle cell disease (SCD), according to new research published inBlood Advances This is one of the first large, real-world, long-term studies…

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9
Oct

Contraception In Sickle Cell Disease

Exploring the contraception options that exist for you with sickle cell disease could feel like a daunting task. You want to know what options will not increase your stroke risk while preventing pregnancy or even calming cramps and menstruation…

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The Heart of Gold Sickle Cell Foundation of Virginia, Inc.
P.O. Box 23681 Alexandria, VA 22304
Phone: 703-370-3234

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