Imagine a place where kids facing unique health challenges can just be kids. A place filled with laughter, friendship, and adventure, where medical needs for children with sickle cell disease are understood and met with expertise and compassion. That’s…
Join us for an engaging, informative, and supportive journey as we explore the realities, breakthroughs, and triumphs of living with sickle cell disease. Our podcast is dedicated to creating an awareness about this condition while also advocating for patients’…
Exploring the contraception options that exist for you with sickle cell disease could feel like a daunting task. You want to know what options will not increase your stroke risk while preventing pregnancy or even calming cramps and menstruation…
**FAIRFAX, VA** — September marks Sickle Cell Awareness Month, and this year, the INOVA Schar Adult Sickle Cell Center hosted a pivotal town meeting aimed at uniting advocates, county agencies, and the public to raise awareness about sickle cell…
Pulmonary hypertension is when you have high blood pressure, but it is limited to your lungs. (This is just like the high blood pressure you have when they take your BP at the doctors’ office, only it is only high in your lungs) in adult sickle cell patients, this is not a rare condition, and occurs in about 1/10 adults with sickle cell disease.
Discover the incredible story of a young man and his bone marrow transplant experience. In this episode, we hear from a courageous young man and his supportive father as they recount their transformative journey through a bone marrow transplant…
Dr. Smith feels says he feels encouraged about the progress so far but believes there is still room for improvement in the areas of getting more funding for treatment and community programs.
SCDAA and MedicAlert launched a pilot program designed to improve the emergency room experience for sickle cell warriors. HOW IT WORKSParticipants complete their MedicAlert digital health profile, which contains their physician-approved pain plan, their hematologist’s contact information and vital…