George Carter and James Frazier II have beaten the odds. Both Richmond men are living with sickle cell disease. The genetic blood disorder proves fatal for most people before they reach the age of 50. Frazier is now 60.…
The Heart of Gold Sickle Cell Foundation of Northern Virginia is proud to partner with INOVA’s team at the Adult Sickle Cell Center
Podcast Interview Defining Sickle Cell:Nicole Long Meet Nicole Long. A married sickle cell warrior who discusses how she took ownership of her lifestyle to manage her sickle cell. https://heartogold.org/wp-content/uploads/2022/09/nicole-Long-8_28_22-11.02-PM.mp3
View the latest information on our upcoming blood drive in McLean Va! Sickle cell disease is an inherited blood disorder that affects red blood cells. People with sickle cell disease have red blood cells that contain mostly hemoglobin S,…
https://www.eventbrite.com/…/cure-sickle-cell-now-event… Thanks to all who have already registered for the 17th Annual Cure Sickle Cell Now Move-On event, being held on September 23, 2023! For those who haven’t, don’t wait – register now for FREE to guarantee getting a…
Congratulations to Ayana Johnson! On June 25 she was crowned Miss Virginia’s Outstanding Teen for 2022.
Ayana who is from Suffolk, Va., mission during her reign, is a social impact initiative entitled, Ayana’s R.E.A.D. – Readiness to Empower, Advocate and Dimmish Hopelessness in Chronic Illness.
Pulmonary hypertension is when you have high blood pressure, but it is limited to your lungs. (This is just like the high blood pressure you have when they take your BP at the doctors’ office, only it is only high in your lungs) in adult sickle cell patients, this is not a rare condition, and occurs in about 1/10 adults with sickle cell disease.
Join the Fight Against Sickle Cell Disease! About 100,000 people in the United States have sickle cell disease. Most are of African descent. The disease causes red blood cells to harden and form a C-shape (like a sickle). When…