Heart of Gold - Sickle cell Advocacy and Support
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8
Sep

Virtual Blood Drive

Special thanks to Pfizer Inc. and Genetix Biotherapeutics for their generous sponsorship of the 5th Annual Sickle Cell Disease Town Hall.

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3
May

Sickle Cell Retinopathy

Why Eye Exams Matter Sickle cell disease can affect the retina. The light-sensitive layer at the back of the eye responsible for vision. Blocked blood vessels can reduce oxygen flow and lead to abnormal blood vessel growth, bleeding, and…

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8
Mar

Gene Therapy & Medicaid 

 Plain-Language Education for the Sickle Cell Community – Prepared for listeners of Blood, Sweat & Cells: Real Talk About Sickle Cell Disease.  An educational podcast by The Heart of Gold Sickle Cell Foundation of Northern Virginia Inc. Available on…

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8
Feb

Medical Minutes

Dental care is often overlooked, but for people living with sickle cell disease or carrying the sickle cell trait, oral health can be a critical part of preventing serious complications and protecting overall wellness. In this episode of Medical…

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8
Feb

Press Release: Feb 2026

The Heart of Gold Sickle Cell Foundation applauds recent bipartisan federal legislative actions that preserve critical sickle cell programs and expand access to care. Read our full FY 2026 federal advocacy update below.

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8
Feb

Dental Care & Sickle Cell: What You Need to Know

Dental care is often overlooked—but for people living with sickle cell disease or carrying the sickle cell trait, it can be a critical part of staying healthy and preventing serious complications. In this powerful and eye-opening episode of Blood, Sweat,…

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7
Dec

Podcast: Food Safety 101 for the holidays

We all love a good holiday meal with turkey, sides, and sweet desserts — but for people with sickle cell disease or compromised immune systems, a food-borne illness can be far more than an inconvenience. It can be a…

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4
Oct

Jones: Know Your Sickle Cell Trait

The Jones Family opens up about their experience raising a daughter with sickle cell disease. They share their story to emphasize the importance of knowing your sickle cell trait status and staying informed about sickle cell awareness.

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4
Oct

Hill: Know Your Sickle Cell Trait Status

Meet the Hill Family, whose daughter lives with sickle cell disease. They share their journey and highlight the importance of knowing your sickle cell trait status. The Hills also discuss how treatments like hydroxyurea, along with healthy choices in…

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4
Oct

Alan: Know Your Sickle Cell Trait Status

Fonta Gilliam, the mother of a child with sickle cell disease, shares her journey of supporting her daughter’s care with hydroxyurea. She also highlights the critical need for blood donations from people of color, who play a vital role…

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The Heart of Gold Sickle Cell Foundation of Virginia, Inc.
P.O. Box 23681 Alexandria, VA 22304
Phone: 703-370-3234

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