Heart of Gold - Sickle cell Advocacy and Support
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4
Oct

Sickle Cell Awareness: Did You Know

Fonta Gilliam, the mother of a child with sickle cell disease, shares her journey of supporting her daughter’s care with hydroxyurea. She also highlights the critical need for blood donations from people of color, who play a vital role…

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31
Aug

Podcast: Cure No Longer Out of Reach: Half-Match Bone Marrow Transplant

On this episode of Blood, Sweat, and Cells, host Valerie Bey sits down with Dr. Robert Brodsky from Johns Hopkins to talk about a groundbreaking half-matched bone marrow transplant, opening the door to cures for more sickle cell patients…

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20
Aug

Sickle Cell Breakthrough – Shauna’s Story

Researchers at Johns Hopkins performed a half-match bone marrow transplant. This pioneering procedure successfully treated Shauna Whisenton’s sickle cell disease and gave her a new lease on life. For more information, visit http://www.hopkinsmedicine.org/hemato

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20
Aug

Podcast: Blood, Sweat & Cells: Half-Matched Bone Marrow Transplant: KeAndra’s Story

Born with sickle cell disease, KeAndra Hickman endured years of painful crises, countless hospital stays, and constant uncertainty about her future. Then she discovered a groundbreaking option—a half-matched bone marrow transplant—and decided to take the leap. In this episode…

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19
Jun

Blood Donation Brochure

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19
Jun

Be a Lifeline: Why Platelet Donation Matters for Sickle Cell Warriors

Be a Lifeline: Why Platelet Donation Matters for Sickle Cell Warriors   For our sickle cell warriors, transfusions aren’t just treatment – they’re often urgent lifelines. While whole blood is vital, platelet donation is especially critical during a shortage!  …

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19
Jun

Sickle Cell Awareness: Did You Know?

The Fairfax County Board of Supervisors proclaimed September as Sickle Cell Awareness Month. Sickle cell disease is a serious and painful condition affecting an estimated 100,000 Americans and millions of people around the world. For those affected by this…

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18
Jun

Sister’s Bone Marrow Transplant Cures Child’s Sickle Cell Disease

September is Sickle Cell Awareness Month. Everyone is encouraged to register for Be The Match. It is difficult for anyone to find a match, even more so for patients with SCD because the registry has a low number of…

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25
Apr

Real-world study finds Hydroxyurea effective long-term in children living with sickle cell disease

Story by Science X Staff April 2025 Hydroxyurea remains effective long-term in reducing emergency department visits living with sickle cell disease (SCD), according to new research published inBlood Advances This is one of the first large, real-world, long-term studies…

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18
Mar

2025 Heart of Gold Newsletter

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The Heart of Gold Sickle Cell Foundation of Virginia, Inc.
P.O. Box 23681 Alexandria, VA 22304
Phone: 703-370-3234

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