Discover the incredible story of a young man and his bone marrow transplant experience. In this episode, we hear from a courageous young man and his supportive father as they recount their transformative journey through a bone marrow transplant…
Dr. Smith feels says he feels encouraged about the progress so far but believes there is still room for improvement in the areas of getting more funding for treatment and community programs.
SCDAA and MedicAlert launched a pilot program designed to improve the emergency room experience for sickle cell warriors. HOW IT WORKSParticipants complete their MedicAlert digital health profile, which contains their physician-approved pain plan, their hematologist’s contact information and vital…
January is National Blood Donor Month Did you know? About every 2 seconds, someone in the U.S. needs blood. A single blood donation can save up to 3 lives. Only 3% of age-eligible individuals in the U.S. give blood…
On this edition of Blood, Sweat and Cells: Real Talk About Sickle Cell Disease, we delve into the unique challenges women face when managing sickle cell disease, from menstrual issues to fertility concerns. Join us as we have a…
The Heart of Gold Sickle Cell Foundation of Northern Virginia is proud to partner with INOVA’s team at the Adult Sickle Cell Center
View the latest information on our upcoming blood drive in McLean Va! Sickle cell disease is an inherited blood disorder that affects red blood cells. People with sickle cell disease have red blood cells that contain mostly hemoglobin S,…
https://www.eventbrite.com/…/cure-sickle-cell-now-event… Thanks to all who have already registered for the 17th Annual Cure Sickle Cell Now Move-On event, being held on September 23, 2023! For those who haven’t, don’t wait – register now for FREE to guarantee getting a…
Congratulations to Ayana Johnson! On June 25 she was crowned Miss Virginia’s Outstanding Teen for 2022.
Ayana who is from Suffolk, Va., mission during her reign, is a social impact initiative entitled, Ayana’s R.E.A.D. – Readiness to Empower, Advocate and Dimmish Hopelessness in Chronic Illness.